Something different

I hope everyone had A great weekend!!! I managed to get Saturday and Sunday off again this weekend, What A blessing that was.

Every weekend Nick and I go to the flea market (Mainly for our produce) but it is the same ol' same ol' every weekend.Instead of heading to the flea market Nick and I made our way down town to the Riverside arts market I was pleasantly surprised.

There was a lot of things that people made, Beautiful art, amazing music and lots of good people.

Nick and I walked around for A little bit,Sat and enjoyed the live music right on the river and of course took some pictures. Call me corny but I was looking around people watching and everyone was so darn happy,I love that. Just for A second its A reminder of all the good in the world!

Nick and I were walking around and I found the cutest sign, I loved it and Nick just said "It looks old" he does not get the vintage worn look.

They even had valet for bikes

I Think that this is our new favorite spot for the weekend. All of the food there looked SO yummy and smelled so good,Maybe next weekend! If you live in Jacksonville you should defiantly check it out and its FREE!! 

On another note Nick and I along with some amazing help have been busy busy busy with the Bowling For Breath event that our heads are spinning. This year seems to be way bigger and better than last year and we are so excited. We are still looking for people or business's who would like to donate items or gift certificates to be raffled off. Please get with me if interested.

I hope everyone has A great week!!!!

Pacca

Last night Nick and I went to the annual Pacca benefit I love this event for so many reasons. All the money that is raised a this fundraiser goes back to the patients. At Nicks Dr. appointments he will randomly get A target gift card or A big jar of trail mix. When you are having A crappy Dr. visit and you get something like that it makes your day A little bit better. Not only do they do little things like that but Nick and I really got the benefit from it this past week.When we were trying to get out of the hospital we had A bit of A hold up with the insurance company. They would pay for all of Nicks meds but didn't want to pay for all of the medical supplies for him to do at home ivs.  It would have costNick and I 40 bucks A day. So Nick and I were going to have to stay up at the hospital for another week and a half. Thankfully pacca came through and is paying that for us. That is so huge!! I also love going every year because we get to see all of our favorite people. We got to see all of Nicks nurses and some of the pediatric team who has gotten Nick where he was when he moved over to the adult CF world.

Nick with his pediatric Dr.

Nick and I with his nurse Ronnie

Nick seems to be doing better and has more of A appetite now.I have noticed him still running out of energy which is so hard for him because he hates to just relax. Thanks so much for everyone who has thought about us and for those who have been praying for us. Sorry if I have seemed out of touch lately I have a lot going on and haven't been in much of A mood to chit chat.

Some randomness for you

Hey everyone, I hope you all had A great memorial day weekend. Nick and I went to the beach and really had A nice day. I cant believe it but I really didn't take any pictures, I guess I just didn't want to fuss with my camera at the beach. Poor Nick every time we go to the beach now he gets sun sick, Last time we thought it was from the cipro he was on but apparently not. Does anyone else get like this?

A update on our friend Mo, Thanks to all who have been praying for her. I do believe we are watching A miracle in the making folks. She is still fighting strong and has had A good couple of days where she has been stable.Things are starting to look better but she still has A long road to recovery. Its amazing what prayer,love and the will to live can accomplish.I know I say it all the time but  be grateful people for you never know when everything can change.

Nick and I are counting down the days until vacation at Sunny Shores Sea Camp for people and families who have been touched with CF.We are beyond excited to see the great families we met last year and get to meet the new families. I just love meeting new families and hearing there story and how cf has been apart of their lives. Camp for us last year was just so amazing and we are blessed to be able to go again this year. They have had SO many applications from families that they actually had to turn some families away this year.

Nick is doing well still kicking butt in the gym and has even got me motivated again. I have been kinda bad and haven't been going to the gym now for about A month and A half. So he gave me A little push and I started back yesterday. I was reminded today of how much I HATE cardio... Unless its zumba but the elliptical is my least favorite. I know it works the best and burns the most calories but geesh that thing is some kinda serious. Back to eating right again to, SOOO BORING but it pays off big time.

This weekend A friend of mine and I rented A booth at the local flea market in hopes to sell some of her diaper cakes and baby stuff as well as my tutus and diaper wipe cases so we will see how that goes... Wish me luck

Nick and I NEED YOUR HELP!!!! As you all know we are hosting the 1st annual bowling for breath event for Cystic Fibrosis and we need door prizes. We already have some great things but could use A couple more. If interested in donating anything and or attending the event please get with me by e-mailing me.

I hope everyone has A GREAT weekend and remember to keep smiling...

Bowling For Breath

Last year I attended A event for breast cancer called Bowling for Boobs!!! It was TONS of fun and A great way to raise money for A good cause. Then I started to think to myself, Why cant we do this for Cystic Fibrosis, I mentioned it last year and thought about it some but I guess it just wasn't in the cards...THINGS HAVE CHANGED.

I am happy to say that things are on A roll for the first annual BOWLING FOR BREATH Cystic Fibrosis fundraiser. I have A bowling alley who is VERRY interested in hosting the event and gave us A great deal. I go and meet with leslie from the CF foundation on Tuesday to discuss details.I have HIGH hopes for this event and know in my heart that we are going to have A good turn out.

Nothing is set in stone but this is what I am working on....

WHO:YOU and your family and friends

WHAT: 1st annual Bowling for Breath

WHERE: Cassat Batt Bowl

WHEN: August 28Th from 10-1..Not set in stone but pretty sure

WHY: To raise money for Cystic Fibrosis and helping CF stand for CURE FOUND.

This is what I need from you my readers...

There is going to be door prizes and I have some GREAT prizes and gift certificates so far but we need more. So if you know anyone who can donate some kind of door prize and or gift certificate please let me know.

I also need you to let me know if you and your family and friends would be interested in joining us for the fundraiser.

I hope we have A great turn out!!! Once I set things in stone i will have  A page for you to regester...

Have  A great week I know Mondays are rough but be the one with the smile... :)

Cayston

Nick and I are SO exited about this new medicine that he is about to be starting.Believe it or not his insurance is actually going to cover it so we are even more excited about that. Back in 2008 Nick participated in A study for this drug called Aztreonam which is now called cayston and he loved it. When you do A study you get either A placebo which is nothing its fake or the real thing, We knew He had gotten the real thing because it worked so well. For Nick to be able to use this medicine now along with other cfers after participating in the study to get it approved is pretty cool.

Nick grows something in his lungs called pseudomonas which is A type of bacteria. This drug is suppose to help improve Nicks respiratory system. So we are really excited about this.Great things are to come with the research that the foundation is doing. Its good to see where all of our hard work from fundraising really paying off.

Great Strides 2010

Yesterday Nick and I along with some of our biggest supporters walked int he 2010 Great Strides walk. It was so much fun and really nice to see everyone again and meet new faces as well.This was the first year that I raised A good amount of money to go to finding A cure.It means so much to me and yet every year I find my self procrastinating until the very last minute.Nothing changed this year I just kicked butt and got as many donations as I could. With your help our team ROCKED this year, We even got the Great Strides fever and are doing the Fort Clinch walk on the 15th.

This year was also VERRY bittersweet, I got to meet Jeremy Masons Mom. Jeremy Mason is A young man who passed away with Cystic Fibrosis not too long ago. He was A very talented young man who played the guitar and also sang.I have previously wrote about Alex Colbert who passed away A few months ago, Jeremy and Alex were best friends. They would actually plan there hospital visits so they would be in together. That is when Nick and I met Alex and Jeremy,Nick and the boys were always in the hospital at Wolfson's together. That is where we learned of there love for music,At all hours of the night... hehe

Yesterday was the firs time I met hist mother, And she was such A amazingly strong woman. I found myself not able to talk about the loss of the boys and yet so happy that she was able to make it to the walk. She was A inspiration to me that there is hope and God forbid anything ever happened to my husband I WILL MAKE IT THOUGH... Thanks Nancy

We have decided to do the walk At Fort Clinch and for you Nassau County Folks, We would love to see you there. Just go here for details and to register and or donate.

Doing Dishes/Ladies Night Out

I am so excited to say that this fundraiser at doing dishes turned out AWESOME!!!! Everyone had A great time and we raised money for our team. I am happy to say that I think this will be A annual event,Fingers crossed. Here are some pics from the night... Thanks to all who did come and participate and to those who couldnt make it but donated...

Crazy Beautiful

Today was kinda crazy, I had the day off which called for lots of errands. Nick and I ran around trying to gather up donations for the Great Strides walk. We had some luck which made my day  week,Thanks to all those who donated.Nick and I went out to lunch which was oh so yummy and I splurged on A sweet tea which has been oh too long. Oh how I have missed you sweet tea,My hips still hate you though.

While we were running around we thought we would have A little fun, Because after all Nick and I are two big kids. Nick has been wanting to go to the indoor batting cages in Macclenny so bad so off we went to hit some balls.Once I got in there and saw how fast the balls flew I quickly decided I was out, Call me A chicken if ya want. I just wasn't feeling getting pegged with a ball going 60 mph,Sorry for the lack of entertainment.Nick on the other hand loved it,The guy was nice enough to not even charge us and just let Nick try it. Nick learned it was a great form of air clearance as he kina got wore out quickly.

When we got home my sister in law and her husband came over with little sweet Trace.I cant belive how fast this little guy is growing,He is looking more and more like his Dad. Then my friend Brittney came over with her little girl Haley and Chase who was also born on the same day as Trace and two rooms apart. HA!!!

Tomorrow is back to the grind with work,Then we will be off to Ft. Lauderdale for vacation on Wednesday.I am SO excited I really am ready to see my Mom and Step Dad and MORE than ready for  A vacation. Have  A GREAT Thursday people