Sunny Shores Sea Camp 2010

Well Nick and I are back to reality after our trip to Vero Beach. This was our second year attending Sunny Shores Sea Camp which is A 3-4 day retreat for families who are effected by Cystic Fibrosis.Last year was life changing for Nick and I, especially Nick and well this year was not much different. There were 6 new families at camp this year and it was so good to meet each and every family and hear there story. I just wish that every CF family could attend this retreat and learn and feel what we do when we attend every year.It is just something I cannot explain, The different ways that you spiritually and emotionally grow are simply amazing. Going to this retreat is somewhat controversial as most Dr's say that you should not be around other people who have cystic fibrosis. Honestly I dont know where Nick would be if we didn't go to sssc last year.Nick and I both know that attending this retreat last year gave him the knowledge and the strength to fight harder. It simply saved his life last year and for that I will be forever grateful. This retreat has done far more for Nick and I than any Dr can do for us both, It gave us the motivation to keep going.I have tons more to say and will write soon but for now enjoy the pictures.

 

Some randomness for you

Hey everyone, I hope you all had A great memorial day weekend. Nick and I went to the beach and really had A nice day. I cant believe it but I really didn't take any pictures, I guess I just didn't want to fuss with my camera at the beach. Poor Nick every time we go to the beach now he gets sun sick, Last time we thought it was from the cipro he was on but apparently not. Does anyone else get like this?

A update on our friend Mo, Thanks to all who have been praying for her. I do believe we are watching A miracle in the making folks. She is still fighting strong and has had A good couple of days where she has been stable.Things are starting to look better but she still has A long road to recovery. Its amazing what prayer,love and the will to live can accomplish.I know I say it all the time but  be grateful people for you never know when everything can change.

Nick and I are counting down the days until vacation at Sunny Shores Sea Camp for people and families who have been touched with CF.We are beyond excited to see the great families we met last year and get to meet the new families. I just love meeting new families and hearing there story and how cf has been apart of their lives. Camp for us last year was just so amazing and we are blessed to be able to go again this year. They have had SO many applications from families that they actually had to turn some families away this year.

Nick is doing well still kicking butt in the gym and has even got me motivated again. I have been kinda bad and haven't been going to the gym now for about A month and A half. So he gave me A little push and I started back yesterday. I was reminded today of how much I HATE cardio... Unless its zumba but the elliptical is my least favorite. I know it works the best and burns the most calories but geesh that thing is some kinda serious. Back to eating right again to, SOOO BORING but it pays off big time.

This weekend A friend of mine and I rented A booth at the local flea market in hopes to sell some of her diaper cakes and baby stuff as well as my tutus and diaper wipe cases so we will see how that goes... Wish me luck

Nick and I NEED YOUR HELP!!!! As you all know we are hosting the 1st annual bowling for breath event for Cystic Fibrosis and we need door prizes. We already have some great things but could use A couple more. If interested in donating anything and or attending the event please get with me by e-mailing me.

I hope everyone has A GREAT weekend and remember to keep smiling...

Camp and Cases

Nick and I went to the most amazing camp last year just for people with cystic fibrosis. It truly was life changing for us. They cover 100 percent of your stay it is all inclusive and words cannot explain how amazing it it. Well we defiantly wanted to go this year but kinda had A scare. The camp had SO MANY families apply new and returning that they couldnt accommodate everyone. So they sent out A mass e-mail stating that they were going to be letting everyone know soon weather they got in but if not you would have first priority next year. Nick and I were so bummed and definitely thought we were out this year...NOPE WERE GOING TO CAMP!!!! It is kinda bittersweet though because there are alot of other families who we are going to miss out on this year We are however grateful for our spot

On another note I am now making and selling tutus as well as the wipe cases. I have added A few more wipe cases and orders are coming in so I am really excited.. Be sure to contact me to get yours.. XOXO

Right place,Right time

This past Friday I had off and Nick needed to pick up some meds from the pharmacy downtown at Nemours.While we were there we ran into A good friend of ours Chelsea,We met her and her family last year at camp.They are such A joy to be around and are good people,It was nice to play catch up for A little bit. While Nick and I were there he really wanted to stop by and see A nurse that holds A special place in our hearts.Unfortunately she was not there,But can I just say how much I LOVE when God puts us in the right place at the right time.While we were waiting to see if this nurse was available another lady waiting asked us if Nick did studies for CF with this nurse. We said well we use to but haven't much lately,She told us that two of her children have Cf and they participate in the studies. So when we heard that she had two children with Cf we told her Nick also has Cf.For those of you who do not know, Cf has previously been more of A childhood disease as most Cf patients didn't make it into adulthood. Thankfully things have changed and the expectancy of ones life has also changed. With that being said when I meet another adult with Cf it is simply makes me smile and gives me hope. Hope and reassurance that there is A tomorrow for these children who are battling this disease and for Nick. So when we met Gail I know it warmed her heart to see Nick as good looking as he is and be able to relate Nick and her son.Anyways one thing went to another and we were just so overwhelmed and wrapped up in conversation.She did not have her husband nor the children with her. She invited us to have lunch with her family and I am so glad we did.

Nick and I with the Wade family at Op's in Fernandina

A goofy picture of courseThe wade family is from Waycross Ga but have A beach house in nearby Fernandina. The salt water air is REALLY good for people with Cf so I would say that is A great investment. Gail and Jeff have three adorable children Hannah who is 15 and really smart,Brent who is 12 and has CF and precious little Madison who is 10 and also has cf. They were such A FUN family and I tell ya everything happeneds for A reason. I am so happy to have them as apart of our Cf family, We hope to see them at camp this year. We ate at Ops in Fernandina, It was REALLY good and the house salad was O so yummy. We were really enjoying ourselves with them, So after lunch we decided to go grab some ice cream and browse the shops downtown. It was so nice to talk and laugh with them and listen to what works for them and share some of our tricks with them. Nick kept saying how much of himself he saw in Brent,and Madison just had SO much energy. They had to get going and head back to Ga,But I do believe we have met some life longs friends in this fight that we have going on here. I tell ya it sure makes things a lot easier when ya got people there. Before they left we snapped some pictures, It was nice to see I was not only the one who carries my camera EVERYWHERE. Gail is also A picture FANATIC,It was great. Thanks again to the Wade family, We had such A great time and hope to see you sooner than later. Brent,Gail,Jeff,Hannah and Madison

Nothing short of Amazing

Jessica and JeffNick and I hanging out on the lawn
Billy and Nick Playing around with my new camera The elephant that greeted us in the room One of the many amazing families we met Nick and I At dinner the last night of camp

Paradise

Cant wait to go back

This past week Nick and I took A trip to Vero beach for the Sunny shores sea camp. It is A camp for people with Cystic Fibrosis and their families to go. It is held at the Disney Vero beach resort and was nothing short of life changing for Nick and I. When I found out about the camp I was really excited to go and meet other people with CF and their families. I thought it would be great for Nick to be around other people who knew exactly what he was going through and learn about their stories and what they go though. I never thought in A million years that I would learn as much as I did from these AMAZING people. At the camp they had what they call A "Pow Wow" where just the people with CF go and share their stories and what they are going through or what they do to keep themselves healthy. It is also A open floor for questions and is facilitated by A Dr. so no wrong information is given out. I wasn't aloud to go in because I didn't have CF but when Nick came out of that Pow Wow he came out with A new state of mind. It was A wake up call for him. He really finally realized how important it is to do everything in his power to keep his body healthy. It was so amazing for me to talk to other spouses who were going through the same thing as me. Not only did we learn a lot but we had the BEST time ever. Nick and I have not laughed like that in A very long time. After A couple of days we realized how great laughing is for Air Clarence. We spent A lot of time at the pool and Nick being the kid at heart that he is won the water slide races one day. I don't think there was A night that we were there that we went to bed before 2. My birthday was also on Friday so we celebrated that while we were there,At dinner that night A friend we met at camp got everyone at dinner to sing happy birthday to me. I thought it was embarrassing when the people at the restaurant sing to you,Try having 197 people sing happy birthday. It was great though I wouldn't have had it any other way then to spend my birthday with these great people. I feel so blessed for Nick and I to have been able to go to Sunny shores camp this year I can only hope that we will be attending next year.For someone with Cf this is the most life changing,spirit boosting,educating time for them.There is nothing more special than to go to this camp and be around people who are just like you and you don't feel alone anymore. I will be posting lots more pics here are just some....be sure to comment and show some love... XOXO ALWAYS

NOT BLOGGING

No excuses....I just haven't been blogging,Then again not a lot has been going on. Nick is doing REALLY good and sounds great. Nick and I are leaving this morning for our much needed vacation to Vero Beach Fl. We are SO excited to just get away just the two of us and enjoy this time. We are gonna have a lot of fun and meet lots of new people and I love to meet new people.My birthday is also on Friday so that's gonna be fun, I cant believe I am going to be 23!!! For my birthday last night Nick came home and handed me A present, So I unwrapped it and it was A OOOLLLLLLd 35mm camera.. LOL I just laughed and said "Thanks Hunnie" Then he handed me another present and it was his sisters old broken digital camera lol I laughed again and said "Thanks" Then he finally gave me another present and when I opened it, He got me the Nikon coolpix L100..... I LOOOVEEEE It!!! I have been wanting another camera so that's what I got for my birthday and I couldn't be any happier. Anyways Now that I have A new camera I will be taking TOOONS of pics and cant wait to share them with you... XOXO Always