Majior Prayer Request

As most of you know last year Nick and I went to Sunny Shores Sea Camp.While we were there we met the Duffy family their daughter Maureen "Mo" has CF.She has been through quite A bit in her battle with cf even open heart surgery,But she has always been A fighter and pulled through. While we were down to visit my Mom and Step dad About A month ago we met up with Mo and her brother Billy and had A blast. They really are great people and Mo was doing well.Soon after getting home we got news that Mo was in the hospital and not doing well. At first they couldnt figure out what was wrong and wasn't sure how to treat her. Then the Dr. thought it was A virus from A bug bite so they were optimistic about this because they now knew how to treat he and said she would be looking up in 48-72 hours. The next morning Mo started vomiting blood and so they had to intubate her and put her on A ventilator and she was in ICU. Soon after they discovered she had A serious infection from her port. The bacteria that was causing the infection is EXTREMLY rare, So rare that they will be using Mo for future research. They removed the port hoping things would start getting better but then her lung collapsed which caused her numbers to go down.Things started to look A little better and then her numbers dropped dramaticlly so they have paralyzed her and she is now completely on the ventalater. PLEASE PLEASE PLEASE keep her and this family in your prayers. Mo is A amazing person and has A full life to live she will get through this and come out fighting but needs A little help along the way. Thank you so much...

Peace, TuTus and Monkeys

Here are some more of  my creations that I am selling. I have had a lot of good luck with these and have A blast doing them. They make perfect baby shower gifts and the tutus are great for pictures. I can make them in any color or size.

Things are also going REALLY good with the bowling for breath event. I am so excited to see how things turn out. I am hoping we have A great turn out and raise lots of money for such A good cause.

The people at expert Ts donated printing for 120 shirt and now we have to find the funds or someone who can donate 120 shirts. We have tons of door prizes and people really seem interested in it. I hope to see you there, We will have A website up soon with information and registration on it. Have A great weekend.

Bowling For Breath

Last year I attended A event for breast cancer called Bowling for Boobs!!! It was TONS of fun and A great way to raise money for A good cause. Then I started to think to myself, Why cant we do this for Cystic Fibrosis, I mentioned it last year and thought about it some but I guess it just wasn't in the cards...THINGS HAVE CHANGED.

I am happy to say that things are on A roll for the first annual BOWLING FOR BREATH Cystic Fibrosis fundraiser. I have A bowling alley who is VERRY interested in hosting the event and gave us A great deal. I go and meet with leslie from the CF foundation on Tuesday to discuss details.I have HIGH hopes for this event and know in my heart that we are going to have A good turn out.

Nothing is set in stone but this is what I am working on....

WHO:YOU and your family and friends

WHAT: 1st annual Bowling for Breath

WHERE: Cassat Batt Bowl

WHEN: August 28Th from 10-1..Not set in stone but pretty sure

WHY: To raise money for Cystic Fibrosis and helping CF stand for CURE FOUND.

This is what I need from you my readers...

There is going to be door prizes and I have some GREAT prizes and gift certificates so far but we need more. So if you know anyone who can donate some kind of door prize and or gift certificate please let me know.

I also need you to let me know if you and your family and friends would be interested in joining us for the fundraiser.

I hope we have A great turn out!!! Once I set things in stone i will have  A page for you to regester...

Have  A great week I know Mondays are rough but be the one with the smile... :)

Camp and Cases

Nick and I went to the most amazing camp last year just for people with cystic fibrosis. It truly was life changing for us. They cover 100 percent of your stay it is all inclusive and words cannot explain how amazing it it. Well we defiantly wanted to go this year but kinda had A scare. The camp had SO MANY families apply new and returning that they couldnt accommodate everyone. So they sent out A mass e-mail stating that they were going to be letting everyone know soon weather they got in but if not you would have first priority next year. Nick and I were so bummed and definitely thought we were out this year...NOPE WERE GOING TO CAMP!!!! It is kinda bittersweet though because there are alot of other families who we are going to miss out on this year We are however grateful for our spot

On another note I am now making and selling tutus as well as the wipe cases. I have added A few more wipe cases and orders are coming in so I am really excited.. Be sure to contact me to get yours.. XOXO

Cayston

Nick and I are SO exited about this new medicine that he is about to be starting.Believe it or not his insurance is actually going to cover it so we are even more excited about that. Back in 2008 Nick participated in A study for this drug called Aztreonam which is now called cayston and he loved it. When you do A study you get either A placebo which is nothing its fake or the real thing, We knew He had gotten the real thing because it worked so well. For Nick to be able to use this medicine now along with other cfers after participating in the study to get it approved is pretty cool.

Nick grows something in his lungs called pseudomonas which is A type of bacteria. This drug is suppose to help improve Nicks respiratory system. So we are really excited about this.Great things are to come with the research that the foundation is doing. Its good to see where all of our hard work from fundraising really paying off.

Dinosoars, Camo and Polka Dots

Hi my name is Amanda and I am addicted to making bows...I have to admit it I cant stop making these bows....

Now I have something new I am making and at first it was for fun but then I had some people inquire about them to purchase. I have been making diaper wipe cases and they are just too adorable and quite frankly I could use A little pocket change this summer.I have had A little bit of luck with both the bows and the wipe holders which is why I started making more.

So here I am offering my services to you for your bow and wipe case needs... Because every lil girl needs bows and who doesn't love A cute wipe case right???

How much are they you ask???

For me to custom make you one would be twelve dollars. I can find and use any type of material and ribbon. I can even purchase Vera Bradly material which would cost you A little bit more.

I also have A couple of friends who are selling some FABULOUS stuff for GREAT prices if you are interested.

My Friend Megan sells some really cute handmade jewelry.. You can check out her site HERE

Then I have  A friend Leanne who makes these AWESOME and CUTE diaper cakes. These diaper cakes are PERFECT for baby shower gifts.

I have never seen these diaper carriages that she makes anywhere either and I just think they are great. These would be perfect for center pieces at A baby shower.

She also sells gently used children's accessories such as Jumperoos,Bouncy seats,Walkers,Baby clothes as well as some maternity clothes. You can check her site out HERE

I hope to hear from some of you soon to maybe place A order. You can contact me on my face book account as well. Have A GREAT week  and remember it is what you make it.

Sun Sick

Yesterday was the Great Strides walk at Fernandina Beach which was SO nice.Nick and I and our team do A lot of the walks every year just because we like to meet all the different families and keep in touch with ones we already know. It is also A good time for all of our family both Nicks side and mine to get together. So yesterday we went to the walk and it was so nice out, We decided to hit the beach for A little bit after. Unfortunately I had to be to work at 5 so we couldnt stay long, Which turned out to be A good thing.Let this be A reminder, When you are on antibiotics make sure you read the warning label. Nick just went on Cipro which is A pretty strong anti biotic and you are NOT suppose to be in the sun with this one.Nick was reminded the hard way, We were only out there for about A hour and A half but he is now pretty sun sick. I have been keeping him hydrated while he is awake but he has slept most of the day.

The walk went good and I just kick myself in the butt every year because when the walks get here I get SO pumped up about fundraising for the next year. Then when it comes time I procrastinate like crazy. I think I wrote the same thing last year that I am going to raise BIG money next year. It just breaks my heart that I have A team of 30 and we should just be raising A lot more than we do. I have A GREAT team we just like to wait until last minute to do everything.. I hope everyone had A fabulous weekend and I am off to bed A little early I am pretty wore out from the busy weekend. XOXO

My little sister Mackenzie and I

Our team won the "Been there done that" Award

Great Strides Riverwalk

Last night Nick and I along with some of our Walking for Nick team headed over to the Great Strides Riverwalk. I love this walk because it is right on the river on the rooftop of the crown plaza and the atmosphere is awesome. It is A short walk unlike the 6 miles at the other walks and the scenery is just too pretty. It was so nice last night I got to see alot of people I have not in A while like the Day family, They are just AMAZING and we love them to pieces. Then I met a lot of new faces and got to chat with them, I tell ya I love my CF family. I love being a part of something and standing and fighting for something, If you are not this sure is A great cause to be fighting for. Anyways here are some of the pictures from last night. I hope you guys have A great weekend we have been busy working on the bar and it is really coming a long nice I know some of you are really looking forward to seeing it. I think we are going to have a big cookout once its done. XOXO

Nick and I with Jaelynn who also has CF

Haley after her sugar rush with Brittney

Some of our team

My Brother and Sister in law with Trace

The friendship Fountain... Were friends

On the bridge Haley was freaking out

Nick and hsi lil biddy Jaelynn

Jessica and us We heart her

Shake it like A polaroid picture

Today I had off so Nick and I went and picked up my brother and sister A little early from school. Then we headed over to A friend of mine who takes pictures and we did some brother and sister pictures and then some of Nick and I ....We did them for A project we are working on but more on that later. Anyways they came out super cute and was A lot of fun...I am so blessed to have the brother and sister I do they are just so witty and simply amazing. Enjoy the pics!