Terrific Tuesday

Since getting back from camp I have found myself many times day dreaming and wishing Nick and I were still there. Unfortunately I usually snap out of it and realize we are back to reality. I went back to work that following Tuesday to find out that I no longer had A job. So since then I along with the thousand other people in Jacksonville have been job hunting. I have NEVER had A problem getting A job,Lets just say times are different now. I went to 5 places today only to arrive and find 4-5 other people ahead of me for interviews,Its very discouraging. So please keep me in your thoughts and prayers because honestly I NEED A JOB LIKE YESTERDAY!!! On another note I have had A LOT of down time to work on my homework,Take care of Nick, Lay out by the pool and SLEEP IN. It has been bitter sweet, I cant say that I haven't enjoyed sleeping in A little.While at camp Nick and I met A boy named Shawn who is 14 and also has CF. He was quite the cool kid, And has A heart of gold. He has defiantly had A colorful past and Nick and I were very happy to hear that he lived in Jacksonville. I just wanted to put him in my pocket and take him home. So it was great to know that he lived close to Nick and I. He is in the hospital for A tune up and then will be getting A tracheotomy to help him breathe better on the 1st. I decided that I wanted to go see him and went to visit him yesterday and it warmed my heart to see how happy he was to see me.I got to show him pictures from camp and he was so happy to see the familiar faces. So that was really nice to get to see him. Tonight was also bitter sweet it was my last night of class. I was happy for it to be over but sad because I have met so many good people and learned so much. I still have a lot of work to do in order to get my portfolio done. I am such a procrastinator so we will see how that goes. I hope every one has A great 4th of July... XOXO ALWAYS

Sunny Saturdays

Cowboy playing in the pool Nick working on Grams bike
Finished and going for A ride

Relaxing in my new hammock

CowboyOut to dinner with the family

Nick and I at dinner

Today was A great day!!! Nick and I spent most of the day in the pool, It was A beautiful day.Nicks grandma came over today and she had A old bicycle that she wanted us to restore. On fourth of July weekend gram will be riding in the towns parade.So Nick and I worked today on fixing up her old bike. I must say it came out pretty nice.Then this evening Nick decided he wanted burgers for dinner. So, I went into Rachael Ray mode.... I made the BEST burgers I have EVER had in my life, Not to brag on myself..Nick and I have been working on him gaining weight. So I made Bacon,Mushroom, Swiss burgers with A huge onion ring on the top. It was definitely high calorie, and Nick loved them. On another note, in A previous blog I mentioned Roberts (Mc lovins) story and was asking everyone to donate and in return you will receive A cool CF bracelet.Thanks so much to everyone who has donated I know A good bit of you have.If you have not please go to the link on the right on my blog and donate. What is 3.00? Thanks hope everyone has A great weekend... XOXO Always

RUNNING FOR NICK

This past week Nick and I met lots of Amazing people. While we were there we met A group of Cfers who earlier this year in January ran the half marathon in Miami.For the average person it is A achievement to finish A half marathon let alone someone with Cf. So I thought that was pretty cool. Then we met A guy named Mike and his story really inspired Nick and I. Mike is 27 and received A double lung transplant last year.Very soon after receiving his transplant he was set on running in the Cf half marathon in Miami. The therapist continued to tell him that he needed to concentrate on healing and getting better. Not only did he recover great from his transplant 6 months after his transplant he ran in the cf half marathon.That is CRAZY and inspiring. So I have decided to start training for the Cf half marathon in Miami. I have 7 Months and If I just put my mind to it I know I can do it and I WILL DO IT FOR NICK. I am excited I know its gonna be hard work being that I have never run in any marathon. I know with the support of everyone and determination I can do it.... Jump on its gonna be A wild ride... XOXO ALWAYS

FOR MCLUVIN

While at camp this past week we met lots of great people, And then there was MCLUVIN. Okay his name is Robert Schwarzman and he is 20 years old and also like Nick has CF.He is also on the list for A double lung transplant at the University of North Carolina.We had the joy of hanging out with him and learning from him. He taught us a lot about receiving A transplant and calmed some of Nicks fears. Although Nick is not on A transplant list it is not something that is ever out of the question for someone with Cf. When Robert receives his double lung transplant,The transplant is covered but unfortunately the cost of living after A transplant is not. So I am asking you to make A donation. No amount is too small,If you donate more than three dollars you will receive one of the cool CF bracelets shown above.Really what is three dollars, Less than your cup of Starbucks. Please pay it forward and lend A helping hand. Thanks A bunch. Oh and by the way Robert is the twin of Mcluvin from super bad be sure to check out his blog ,make A donation to receive A bracelet.

XOXO ALWAYS

http://robertschwarzman.com/

Nothing short of Amazing

Jessica and JeffNick and I hanging out on the lawn
Billy and Nick Playing around with my new camera The elephant that greeted us in the room One of the many amazing families we met Nick and I At dinner the last night of camp

Paradise

Cant wait to go back

This past week Nick and I took A trip to Vero beach for the Sunny shores sea camp. It is A camp for people with Cystic Fibrosis and their families to go. It is held at the Disney Vero beach resort and was nothing short of life changing for Nick and I. When I found out about the camp I was really excited to go and meet other people with CF and their families. I thought it would be great for Nick to be around other people who knew exactly what he was going through and learn about their stories and what they go though. I never thought in A million years that I would learn as much as I did from these AMAZING people. At the camp they had what they call A "Pow Wow" where just the people with CF go and share their stories and what they are going through or what they do to keep themselves healthy. It is also A open floor for questions and is facilitated by A Dr. so no wrong information is given out. I wasn't aloud to go in because I didn't have CF but when Nick came out of that Pow Wow he came out with A new state of mind. It was A wake up call for him. He really finally realized how important it is to do everything in his power to keep his body healthy. It was so amazing for me to talk to other spouses who were going through the same thing as me. Not only did we learn a lot but we had the BEST time ever. Nick and I have not laughed like that in A very long time. After A couple of days we realized how great laughing is for Air Clarence. We spent A lot of time at the pool and Nick being the kid at heart that he is won the water slide races one day. I don't think there was A night that we were there that we went to bed before 2. My birthday was also on Friday so we celebrated that while we were there,At dinner that night A friend we met at camp got everyone at dinner to sing happy birthday to me. I thought it was embarrassing when the people at the restaurant sing to you,Try having 197 people sing happy birthday. It was great though I wouldn't have had it any other way then to spend my birthday with these great people. I feel so blessed for Nick and I to have been able to go to Sunny shores camp this year I can only hope that we will be attending next year.For someone with Cf this is the most life changing,spirit boosting,educating time for them.There is nothing more special than to go to this camp and be around people who are just like you and you don't feel alone anymore. I will be posting lots more pics here are just some....be sure to comment and show some love... XOXO ALWAYS

NOT BLOGGING

No excuses....I just haven't been blogging,Then again not a lot has been going on. Nick is doing REALLY good and sounds great. Nick and I are leaving this morning for our much needed vacation to Vero Beach Fl. We are SO excited to just get away just the two of us and enjoy this time. We are gonna have a lot of fun and meet lots of new people and I love to meet new people.My birthday is also on Friday so that's gonna be fun, I cant believe I am going to be 23!!! For my birthday last night Nick came home and handed me A present, So I unwrapped it and it was A OOOLLLLLLd 35mm camera.. LOL I just laughed and said "Thanks Hunnie" Then he handed me another present and it was his sisters old broken digital camera lol I laughed again and said "Thanks" Then he finally gave me another present and when I opened it, He got me the Nikon coolpix L100..... I LOOOVEEEE It!!! I have been wanting another camera so that's what I got for my birthday and I couldn't be any happier. Anyways Now that I have A new camera I will be taking TOOONS of pics and cant wait to share them with you... XOXO Always