Tuesday, June 23, 2009


While at camp this past week we met lots of great people, And then there was MCLUVIN. Okay his name is Robert Schwarzman and he is 20 years old and also like Nick has CF.He is also on the list for A double lung transplant at the University of North Carolina.We had the joy of hanging out with him and learning from him. He taught us a lot about receiving A transplant and calmed some of Nicks fears. Although Nick is not on A transplant list it is not something that is ever out of the question for someone with Cf. When Robert receives his double lung transplant,The transplant is covered but unfortunately the cost of living after A transplant is not. So I am asking you to make A donation. No amount is too small,If you donate more than three dollars you will receive one of the cool CF bracelets shown above.Really what is three dollars, Less than your cup of Starbucks. Please pay it forward and lend A helping hand. Thanks A bunch. Oh and by the way Robert is the twin of Mcluvin from super bad be sure to check out his blog ,make A donation to receive A bracelet.


RunSickboyRun.com said...

Thanks for the link to his site.

Also thank you for the insight on what "term" to call us. Much appreciated!


Kellee said...

Sorry about Nicks drop =(
The only thing M does when he needs a big jump in numbers is to really up the exercise and throw in a few more treatments.

We do 2 pulmozyme vials 2 times a day and 3 7% treatments when his numbers are low. So pretty much just double up the treatments.

Let me know if you have any questions or if we can help!