Sunny Shores Sea Camp 2010

Well Nick and I are back to reality after our trip to Vero Beach. This was our second year attending Sunny Shores Sea Camp which is A 3-4 day retreat for families who are effected by Cystic Fibrosis.Last year was life changing for Nick and I, especially Nick and well this year was not much different. There were 6 new families at camp this year and it was so good to meet each and every family and hear there story. I just wish that every CF family could attend this retreat and learn and feel what we do when we attend every year.It is just something I cannot explain, The different ways that you spiritually and emotionally grow are simply amazing. Going to this retreat is somewhat controversial as most Dr's say that you should not be around other people who have cystic fibrosis. Honestly I dont know where Nick would be if we didn't go to sssc last year.Nick and I both know that attending this retreat last year gave him the knowledge and the strength to fight harder. It simply saved his life last year and for that I will be forever grateful. This retreat has done far more for Nick and I than any Dr can do for us both, It gave us the motivation to keep going.I have tons more to say and will write soon but for now enjoy the pictures.

 

Its been A while

Ok I know no excuses, I have neglected my blog here lately.I have lots to catch up on so here goes....

Nick has recently started taking Cayston and he absolutely loves it. I as well as he can tell A huge difference

so we are really excited about that. The only thing about the cayston is that he has to take it 3 times a day,But its worth it. After fighting with the insurance company for what seems like forever he also got the hypertonic saline approved and is back on that now which is amazing and really helps him a lot.

Last week I had A much needed girls day, It was SO nice and A perfect day at the beach. We were there for about A hour and the lifeguards ran everyone out of the water thanks to the sharks making A appearance, I was freaking out.It was nice though to spend the day with my little sister and catch up with my bestie.

This past Saturday was my birthday and we celebrated by heading out for the night. We went to somewhere called harmonious monks, It was tons of fun.It is A restaurant and all the wait staff get up and sing and they give everyone tambourines... It was just a really good time.

Nick and I leave Thursday for Vacation and Sunny shores sea camp.I am so excited to meet all the new family's and spend time catching up with everyone from last year. This place is simply amazing and i wish that every CF family would have the chance to go... So I am off until we get back from vacation. Yall have A great weekend... Cant wait to blog about camp... XOXO

Fabulous Find For MOMS

Hey Yall, I hope you guys are having A GREAT week. I have not done A Fabulous find in A while and how fabulous is this....

Monday June 14th

The Jacksonville Zoo for 2 bucks

You cant beat this deal, Especially with the kids just getting out of school. I hope you guys take advatage of this awesome discount....

Just click HERE for the link and more information.

Some randomness for you

Hey everyone, I hope you all had A great memorial day weekend. Nick and I went to the beach and really had A nice day. I cant believe it but I really didn't take any pictures, I guess I just didn't want to fuss with my camera at the beach. Poor Nick every time we go to the beach now he gets sun sick, Last time we thought it was from the cipro he was on but apparently not. Does anyone else get like this?

A update on our friend Mo, Thanks to all who have been praying for her. I do believe we are watching A miracle in the making folks. She is still fighting strong and has had A good couple of days where she has been stable.Things are starting to look better but she still has A long road to recovery. Its amazing what prayer,love and the will to live can accomplish.I know I say it all the time but  be grateful people for you never know when everything can change.

Nick and I are counting down the days until vacation at Sunny Shores Sea Camp for people and families who have been touched with CF.We are beyond excited to see the great families we met last year and get to meet the new families. I just love meeting new families and hearing there story and how cf has been apart of their lives. Camp for us last year was just so amazing and we are blessed to be able to go again this year. They have had SO many applications from families that they actually had to turn some families away this year.

Nick is doing well still kicking butt in the gym and has even got me motivated again. I have been kinda bad and haven't been going to the gym now for about A month and A half. So he gave me A little push and I started back yesterday. I was reminded today of how much I HATE cardio... Unless its zumba but the elliptical is my least favorite. I know it works the best and burns the most calories but geesh that thing is some kinda serious. Back to eating right again to, SOOO BORING but it pays off big time.

This weekend A friend of mine and I rented A booth at the local flea market in hopes to sell some of her diaper cakes and baby stuff as well as my tutus and diaper wipe cases so we will see how that goes... Wish me luck

Nick and I NEED YOUR HELP!!!! As you all know we are hosting the 1st annual bowling for breath event for Cystic Fibrosis and we need door prizes. We already have some great things but could use A couple more. If interested in donating anything and or attending the event please get with me by e-mailing me.

I hope everyone has A GREAT weekend and remember to keep smiling...