Day one in the hole

Yesterday at around 3:00 Nick got checked in and to our new home away from home.When they came to the room to check his vitals his oxygen was at 86 and he had lost 10 pounds.Lets just say Nick was A little upset about that and was pretty discouraged.I had to be to work this morning at 10:00 this morning and was so sad,I just wanted to stay up there with Nick.When I got up to the hospital this evening he was singing to A different tune.The Dr.some blood drawn to check his nutrition levels due to the weight loss and was surprised to see that everything was good.

The Dr. told him that he is such a perfect candidate for A double lung transplant because he does not have any other CF related issues....Its just his lungs. We are taking it one day at A time and besides me showing up to work looking like A zombie today we are doing good.

Thankful for another day!!!! 

P.S. If you would like Nicks room number,Phone number or the address just send me A e-mail or A face book message

I want to go into the hospital

Happy Thursday yall!!! I hope everyone is having A great week and enjoying this beautiful weather.Nick and I have been laying low lately and just delaying the inevitable.Last week Nick and I were relaxing catching up our dvr when he said "I'm ready to go into the hospital" ..Nick does not like going into the hospital and avoids it at all cost. When I heard him say that I knew he was really not feeling well.

On Tuesday Nick had A Dr.s appointment where they decided that it would be best that Nick goes into the hospital for some good ol' Iv antibiotics. Usually when Nick goes on IVs he does them at home where he has to get up every so many hours to change IVS and just does not get the rest he needs. From now on he will be going into the hospital so that he can rest,They come in and hook up for him,makes sure he gets the air clearance that he needs and brings everything to him. I like it too because I still have to go to work and I don't worry about him as much.

Nicks birthday is Sunday night he is going to be 26!!! WOW how amazing is that considering he was not suppose to see his 15th birthday. I am so proud of him and where he is today the unfortunate thing about CF is you can do everything right and still this nasty disease shows its face and things progress. I cant help but think to myself "Could this be his last birthday before the big transplant". We still have no plans for Nicks birthday he is kind of indecisive on what he would like to do,So we will see.

The other day I had A little meltdown,This has been one of the hardest things I have ever had to do. There are days that it is just unbearable to know that he cant breathe and the simplest things seem impossible for him.Then I found out that A co worker was just diagnosed with stage four colon cancer and today found out it has spread to her lungs.There is also another co worker that I talk with often and her husband has been battling cancer for years and is in the middle of aggressive therapy. So just when I think that everything is falling apart God gives me A little dose of reality that it could always be worse and to be thankful for today.

As you guys finish up your work week and head into the weekend keep that in mind. It could always be worse no matter what the situation you are in and to be thankful for today. Have A great weekend yall!! Below are pictures from when we went to the fair last week,This is my favorite time of the year .

Happy Fall Yall

HAPPY FALL YALL!!!!

I hope everyone is kicking off the fall season with lots of fun,football and of course decorating. I have had so  much fun decorating the house. I'm most defiantly one of those decorate for EVERY holiday kinda girls.In the last post I mentioned that Nick and I would be leasing out A spot in A antique store to sell stuff. We are so blessed yall, Knock on wood it has been going really well and we are having A blast doing it.

On another note things have been kinda difficult for Nick. Cystic Fibrosis is defiantly showing its ugly face and reminding us that CF is A progressive disease. On the 23rd of this month Nick will be 26 and I wish I could say that things were just AMAZING. Nick has gotten to A point where everyday things like taking the trash out,going grocery shopping and making the bed are breathtaking. Nick has been getting winded doing just about everything lately. Its hard because he does not feel "sick" just wore out from the simplest things.

It is so hard to sit back and watch Nick get frustrated with himself because he cant do the simplest things.This is A such a life changer for him considering how active he has always been and has taken some Major adjusting .I have also had to remind myself to slow down and not always be on the go.It is also frustrating for us when the ones we are close to just don't get it. They don't understand how cf effects our everyday lifestyle.

As much as I don't want to say it I do believe this is the "calm before the storm". Nicks transplant Dr. told him he had 3 months to get his lung function up or Nick would have to start the evaluation process for his double lung transplant.Since his appointment in September he has started pulmonary rehab,He is now 2 weeks in and finding himself facing A hospital visit for a exacerbation. He is frustrated at the fact that he cant get a routine going with the gym to get better before getting sick and needing IVS again. What the heck are you suppose to do ?

So with that being said Nick is calling tomorrow to make A appointment with his Dr. knowing good and well it is time for IVS again. Last Dr. visit his Dr told him that he will no longer be doing home IVS and that  he will be admitted from now on. Please keep Nick in your prayers as he is physically and mentally drained and frustrated.

Be thankful for the ability to breathe and remember not to take it for granted.....Just saying