Hallmark Freebie

Nick and I headed to Orange Park tonight to do A little shopping. I LOVE some of the stuff the Hallmark store carries, Especially the hoops and yo yo goodies. While we were in there I over heard the lady telling another customer about getting A FREE card. Everyone loves A freebie,So I asked the young lady who worked there and she showed me to the FREE cards. I thought you had to purchase something and you get your card...NOPE. It is something they are doing to promote the new line of cards. I am not sure if all of the hallmark stores are participating, So just drop in to your local hallmark and see about getting your FREE card. Have A great Friday!!!!

Tires and Goodwill....

HEY YALL, I hope everyone is having A good week!! I have had the past two days off which has been really nice. Yesterday Nick and I went to his Dr. appointment hoping for some good news. This past October when Nick got pretty sick his lung function went down to 21,This is when they talked to Nick and I about him going on the transplant list. Nick being determined that he is has been in the gym EVERY DAY and working REALLY hard to get his lung function up. He has been feeling on top of the world and full of energy. So when Nick and I went to his Dr. yesterday we were certain we were going to get GREAT news that his lung function was up.....Crazy enough, They were not. The night before Nick did A really good workout and I gave him A nice hard back treatment. Therefor Nick and I believe that yesterday morning all this junk was coming up hence why he didn't blow very good numbers. The Dr. decided he wanted Nick to come back in 2 weeks to see if they were better. Fingers Crossed

Nick getting ready to do his PFTs (Pulmonary Function Test)

He puts the clip over his nose, Then puts the mouth piece in his mouth and blows AS HARD AS HE CAN,By doing this it allows the Dr. to see how Nicks lung function is.We get bored.... Nick is famous at his DR. This is A article they did A couple of years ago on Nick and another young lady who has CF. They also aired it and put it on the news. Nick has been in need of tires for his truck, BADLY!!! So since he was kinda down from not doing so well yesterday I asked him if he wanted to go get new tires. To this day I don't know what it is about tires that makes him happy but he was thrilled. So off to discount tires it was,Thankfully we didn't have to wait too long. While they were working on his truck Nick and I decided to take A little walk. I have read SO much about all you fabulous ladies finding these goodwill buys and transforming them into some kinda gorgeous piece.You can head over to the link below and go to her goodwill party to check out some of the amazing things she has done with her goodwill finds...

So off to goodwill we were,Nick WAS NOT happy about this. He thinks I am crazy when I hold up this old tarnished serving tray and smile from ear to ear on how beautiful it is. I guess I just have A love for old antiques or anything I can make over. Anyways my search for anything good was well...not what I had hoped. But...Here are some things that Nick and I gotta laugh at...Goodwill is A GREAT place for Halloween costumes as well. I am off to give the furbaby A bath and do some laundry. Have A GREAT week and remember it is what you make it :)

Nick was amazed at all the STUFFI know it is SO tacky and awful, But I actually liked this hat.... Looking for some "Treasures" Ha!! Then Nick brings me this skirt,Yes I said skirt...Oh it gets worseThe back is shorter than the front...seriously!! It made me laugh

What A weekend

This past weekend was such a great weekend, I feel so blessed. Do you guys ever feel like God has A sense of humour? Friday evening Nick and I went to visit his sister,her husband and the our nephew Trace. Every time I see this little guy I fall in love all over again. It warms my heart to see Nick and the way he holds him and looks at him. I just know that when it is our time Nick is going to be the most amazing father and I am so thankful for that.

Trace and I

Nick with his NephewLater on that evening we got A call from our friends Brad and Brittney who also just had A baby boy named Chase. If you remember, Courtney and Brittney actually had Trace and Chase on the same day. Anyways they have been so busy with the baby that they wanted A night out so Nick and I along with Brad,Brittney and Courtney and Chuck all went out. We all LOVE the Ale house, The food and the atmosphere there is GREAT and it is fairly cheap. It was so nice to get out and catch up, For them as well not having the babies for the night. Afterwards we thought it would be fun to all go bowling, WE HAD A BLAST.

Everyone @ the Ale House, YUMMY
Brittney and IThe new MommiesTrying to bowl and beat NickHe won,As always :( I know it is kind of late but I hope you all had A great valentines day. I personally don't feel like I need that day to tell the people around me that I love them . I swear it was A holiday that Hallmark came up with. It is still fun though to take the extra time to do something special for whoever that person might be. Nick surprised me with the LIVE LOVE BREATH necklace that I have been wanting. It is So special to me and I love it, I will post soon on where you can get it.

Yesterday Nick and I along with my little brother went to A wedding. A high school friend of mine, Alicia was getting married. Her and Ryan looked perfect and so happy together and Alicia was A stunning bride. It was nice to see some familiar faces of high school friends and catch up.They got married on Amelia Island plantation and it was SO pretty.

Ryan,The GroomThe MOH Brittney and I Cameron,Nick and I The beautiful bride Alicia and IAs most of you know Nick has been working EXTREMELY hard since news of the possible lung transplant. He is trying to get his lung function up so that he can prolong the need for the transplant. Nick has A Dr. appointment tomorrow and I cannot wait to see his numbers. I pray that they are way up and that he is doing well. More than likely Nick will start Iv antibiotics this week since it has been about 2-3 months. Please keep Nick in your prayers tomorrow. Have A GREAT week and remember it is what you make it...XOXO

WORDLESS WEDNESDAY

Our Nephew Trace

A little of this A little of that

Courtney and Chuck with Trace Colton Courtney with her Mom,Gram and Trace Trace and ICourtney and Gram with TraceWhat A handsome lil fellaUncle Nick and Trace... Hey everyone, I hope you all are having A GREAT week and if not just smile it will be over before ya know it. Things have been kinda crazy around here, in A good way thank goodness. Last night we got to visit with our little nephew Trace, I tell you baby's are some kinda wonderful. I look at this little guy and my heart just melts, They are so amazing. When he was born I was holding him and I was in awe that this little baby with hands and toes and all was inside another being,Its just so incredible to me. Courtney and Chuck are doing really well too other than the sleepless nights that come along with being new parents.

On another note, Not trying to toot my own horn or anything but I am so proud of Nick and I. We made the new years resolution to get into the gym and get healthy. I wish that everyone would jump on the band wagon with this one because I tell ya I feel SO much better every day. Not only have I lost 15 pounds I am not so tired all of the time and it is so great to be able to go and work out with Nick. He is doing GREAT and loving the changes he sees in himself. Working out for someone with CF is not only important but ITS A MUST DO.

Since the beginning of the new year Nick has had A new medicine plan through medicaid and medicare. We are all SO frustrated with the insurance companies. Nick takes quite A bit of different medicines every day. Some of which can cost up to 3,500$ for each prescription. The lovely insurance that he has only wants to cover so much of the script leaving us with A 350$ co pay. This mind you is for only one script, They do this with several of his meds. Thankfully Nick and I along with his Mom have found companies who will pay for his 350 dollar co pays. Then Nick goes to pick up his hyper tonic saline, Which is pretty much salt water and they tell us that his insurance doesn't cover any of it and its 150.00. So now we are stuck trying to figure out how we are going to get Nick this med that he NEEDS. Thankfully while we search around we have A friend who has the same stuff and had extra.

Its just SO stressful that we have to deal with stuff like this. I know I am complaining/venting A little here but I also know that I am grateful for his insurance in return. Without them he would have no meds, I just wish they were A little more caring and understanding. We still have not heard much back from Nicks Dr. regarding the transplant evaluation. Nick has A Dr.appointment on the 26 hopefully we will hear something then. I hope everyone has A GREAT day and remember it is what you make it.

HAIR POOFING 101

A couple months ago I came across this video that truly changed my life forever. OK maybe its not that serious, But since watching the video and practicing these techniques I have had more compliments on my hair and my "POOF" than ever. It is also REALLY funny and shows you step by step how to get that look without the hassle of the bump it... Those things are So annoying anyways check it out and make sure to comment and tell me what you think...ENJOY

hair-poofing-101

HOPE

This morning when I checked my e-mail and was so happy to get the good news. I believe there is still A long road ahead of us but this gives us hope that we are one step closer to A CURE!!!! Please keep praying and have faith that soon there will be A CURE. Thanks to YOUR donations we are SO close....So don't forget to click the DONATE NOW link at the right... NO AMOUNT IS TO SMALL

SO HERE IS THE GREAT NEWS!!!!

Dear Friend,This week, we gained important new ground in our work to advance the development of new cystic fibrosis treatments.VX-809, a potential CF drug developed by Vertex Pharmaceuticals, showed encouraging results in a preliminary Phase 2a clinical trial. VX-809 is one of the first investigational drugs aimed at treating the underlying causes of CF.The oral therapy was tested in patient volunteers who have the most common cystic fibrosis mutation, Delta F508. Results from the trial showed VX-809 was well-tolerated and, in a subset of CF patients, reduced sweat chloride levels — a key indicator of CF.VX-809 is the direct result of one of the Foundation’s largest investments in drug development. This gives us confidence that our innovative approach to science leads to progress.Without your support, this milestone would simply not be possible. Your contributions help us build hope for the future and continue to advance vital cystic fibrosis research.Thank you for your commitment to the fight against CF. Together, we are making a difference!

Sincerely,

Robert J. Beall, Ph.D.

President and CEOCystic Fibrosis Foundation

800-FIGHT-CFinfo@cff.orgwww.cff.org