HOPE

This morning when I checked my e-mail and was so happy to get the good news. I believe there is still A long road ahead of us but this gives us hope that we are one step closer to A CURE!!!! Please keep praying and have faith that soon there will be A CURE. Thanks to YOUR donations we are SO close....So don't forget to click the DONATE NOW link at the right... NO AMOUNT IS TO SMALL

SO HERE IS THE GREAT NEWS!!!!

Dear Friend,This week, we gained important new ground in our work to advance the development of new cystic fibrosis treatments.VX-809, a potential CF drug developed by Vertex Pharmaceuticals, showed encouraging results in a preliminary Phase 2a clinical trial. VX-809 is one of the first investigational drugs aimed at treating the underlying causes of CF.The oral therapy was tested in patient volunteers who have the most common cystic fibrosis mutation, Delta F508. Results from the trial showed VX-809 was well-tolerated and, in a subset of CF patients, reduced sweat chloride levels — a key indicator of CF.VX-809 is the direct result of one of the Foundation’s largest investments in drug development. This gives us confidence that our innovative approach to science leads to progress.Without your support, this milestone would simply not be possible. Your contributions help us build hope for the future and continue to advance vital cystic fibrosis research.Thank you for your commitment to the fight against CF. Together, we are making a difference!

Sincerely,

Robert J. Beall, Ph.D.

President and CEOCystic Fibrosis Foundation

800-FIGHT-CFinfo@cff.orgwww.cff.org

GREAT NEWS!!!

Nick had one of his routine Dr. Appointments the other day and it seemed to go really well. Later that night when Nick and I were talking about how his Dr. appointment went he told me he had something exciting to tell me. I said what you have been healed and don't have CF any more. He said "No but close". So he began to tell me that their is A new pill that has just been created. He told me that the new pill is suppose to bypass the Cystic Fibrosis gene. Which means that it will bypass all of the terrible Cystic Fibrosis symptoms. It is pretty much A cure to Cystic Fibrosis... Praise God, Praise God, Praise God. We just now have to wait for the pill to be FDA approved. Unfortunately that can take years. I have faith though and I know that everything happens for A reason. So if we will just be patient and wait, It will come with time. This wonderful news just gives us who are affected by CF so much HOPE. So as if that wasn't enough great news. I was just recently talking with A friend of ours who does a lot with the local CF foundation. She began to tell me that their is this new procedure that is also in the process of being tested and approved. This procedure if I understood her right will connect the vas deferens in men with Cf. Connecting the vas deferenes which are the tubes in which the sperm come out of will in return allow wives"That's me" of men with CF to be able to conceive naturally... This is such amazing news and I am so excited to see what comes of this. Anyways I thought I would let everyone know. Nick and I both are very excited about this and cant wait to get more information about it. Hope everyone has A great week.

XOXO Always