So here I am 12:27 at night and just getting up to the hospital to stay with Nick. I absolutely hate seeing Nick like this, Just so miserable and defeated. I feel so guilty inside at times because my life cant stop when Nick gets sick. I feel like as A wife it is my responsibility to nurture and care for him when he is sick and unfortunately my work schedule doesn't allow me to take off when Nick is sick.So here I am at 12:27 trying to get in as much quality time as I can before this lovely disease wears my husband out for the day.
Since getting sick Nick has lost close to 10 pounds as well as all that good looking muscle from his hard work at the gym. I am hoping that this hospital stay is A reminder for him to slow down and remember that he comes first. Nick has another transplant appointment in February where he will be evaluated to see if it is time for him to go on the transplant list. I can only hope that from now until then he will surprise all of is as he did before. He never come short of amazing me and I know he can do it if his body allows.
Nick and I are so thankful for all the thoughts and prayers. I know we certainly need them as we both go stir crazy in the hole (hospital).
Wednesday, December 1, 2010
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2 comments:
Hi Amanda. I started talking to you on FB. But My question is I guess more for Nick. How does he let you know that its okay to keep going on with your life while he is in there? Because we all know it gets so lonely and just want our loved ones there with us all the time but know that its not possible. My thoughts and prayers are with you guys. Hospitals suck but gotta do what you gotta do. :) Love you guys. Stay strong.
My husband has CF and had a double lung transplant on 5/19/10. We've had some ups and downs but for the most part life has been better since his tx. If you need someone to talk to or vent feel free to send me a message. I post on my husbands blog all the time. fahrjr.blogspot.com
Take care of yourself! I understand how you feel more than you can imagine! xoxo
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