Monday, December 29, 2008


Nick had one of his routine Dr. Appointments the other day and it seemed to go really well. Later that night when Nick and I were talking about how his Dr. appointment went he told me he had something exciting to tell me. I said what you have been healed and don't have CF any more. He said "No but close". So he began to tell me that their is A new pill that has just been created. He told me that the new pill is suppose to bypass the Cystic Fibrosis gene. Which means that it will bypass all of the terrible Cystic Fibrosis symptoms. It is pretty much A cure to Cystic Fibrosis... Praise God, Praise God, Praise God. We just now have to wait for the pill to be FDA approved. Unfortunately that can take years. I have faith though and I know that everything happens for A reason. So if we will just be patient and wait, It will come with time. This wonderful news just gives us who are affected by CF so much HOPE. So as if that wasn't enough great news. I was just recently talking with A friend of ours who does a lot with the local CF foundation. She began to tell me that their is this new procedure that is also in the process of being tested and approved. This procedure if I understood her right will connect the vas deferens in men with Cf. Connecting the vas deferenes which are the tubes in which the sperm come out of will in return allow wives"That's me" of men with CF to be able to conceive naturally... This is such amazing news and I am so excited to see what comes of this. Anyways I thought I would let everyone know. Nick and I both are very excited about this and cant wait to get more information about it. Hope everyone has A great week.

XOXO Always


Jaime said...

That's excellent news!!! So happy for you guys.... I'll be praying!!

Suzer said...

Hi Amanda & Nick,

What amazing news, PRAISE GOD!!! I can only imagine how excited you are and for all those affected by CF. We all need to pray for a speedy FDA approval.

Lots of love,

Mom Mom

ellen monds said...

That is wonderful for you both!! Prayers will be said and they will be answered!! All good things come to those who wait!! Love ya both!!

Graciy said...

Hi Amanda,

We have never meet but we are in the same boat. I married my husband Joshua almost 2 years ago and he also has CF. Josh right now is like your husband very stable. I would LOVE to know more about this pill and how to follow your blogg. I cant find you button :) but I'm sure i could learn alot from reading it.

- Graciy