For A good cause

Nicks and his AMAZING nurse RonnieNicks her faviorite....Did I say that?Greg,Barry and Nick....Kicking Cf in the buttWhen Nick was in the hospital A couple of weeks ago his lovely nurse Ronnie came in and gave us some good news. Somebody,She wouldn't tell us who bought tickets for Nick and I to go to this years third annual silent auction. All of the money from the silent auction goes towards the adult cystic fibrosis office that Nick goes to.We were pretty excited about it since we got to go last year and had A BLAST... Its fun to get all dressed up and go and visit with all of Nicks old nurses from Wolfsons and his nurses now.They really are like family to us and we are truly blessed to have A team like them. While we were there we met two GREAT guys and I had the pleasure of meeting another CF wife,Which is so nice.We met Greg and Barry,Both in their 50s and kicking CF'S butt. Greg actually had A double lung transplant back in 1997. He is doing VERY well and looked great. It was nice to talk to someone who was 12 years strong after their transplant. Nick and I had A good time,it was at the Cummer art museum downtown. They raised TONS of money for such a good cause, Its so nice to see. Nick and I have A busy weekend ahead of us...Tomorrow we are going with Nicks sister Courtney and her husband Chuck for pics. She is taking some maternity pics and Nick and I need A Christmas card pic. The weather is SO gross out so I have No idea where we are going to go now.We shall see.... Tomorrow night we have the Christmas parade hopefully that will help me get in the Christmas spirit...Hope everyone has A GREAT weekend!!!! XOXO Always

GREAT NEWS!!!

Nick had one of his routine Dr. Appointments the other day and it seemed to go really well. Later that night when Nick and I were talking about how his Dr. appointment went he told me he had something exciting to tell me. I said what you have been healed and don't have CF any more. He said "No but close". So he began to tell me that their is A new pill that has just been created. He told me that the new pill is suppose to bypass the Cystic Fibrosis gene. Which means that it will bypass all of the terrible Cystic Fibrosis symptoms. It is pretty much A cure to Cystic Fibrosis... Praise God, Praise God, Praise God. We just now have to wait for the pill to be FDA approved. Unfortunately that can take years. I have faith though and I know that everything happens for A reason. So if we will just be patient and wait, It will come with time. This wonderful news just gives us who are affected by CF so much HOPE. So as if that wasn't enough great news. I was just recently talking with A friend of ours who does a lot with the local CF foundation. She began to tell me that their is this new procedure that is also in the process of being tested and approved. This procedure if I understood her right will connect the vas deferens in men with Cf. Connecting the vas deferenes which are the tubes in which the sperm come out of will in return allow wives"That's me" of men with CF to be able to conceive naturally... This is such amazing news and I am so excited to see what comes of this. Anyways I thought I would let everyone know. Nick and I both are very excited about this and cant wait to get more information about it. Hope everyone has A great week.

XOXO Always