So Nicks nurse called me the other day and said she wanted to talk to me about my son Nick Brown... What the heck, They always do this. Do they think that people with Cf dont have significant others and always assume Im mom. LOL She says that it is time for Nick to get his port flushed out and that we have to call the Dr. and get the orders. That were all ready suppose to be in place by the way. So I tell Nick and do you think that he is going to be responsible and call anytime soon? Of course not.... I honestly think he is scared to have it flushed not saying I blame him . Some dummy at the hospital told him it was kinda painful therefore he is not going to go out of his way anytime soon to make that appointment. He is doing good since the surgery and his airways sound good. I just wish we could get some more weight on him . Especially since winter time is coming. Any Suggestions. The Florida Georgia game is coming up this Saturday. I am really excited about that. It is pretty much the BIGGEST football game besides the super bowl. We or course are rooting for the GATORS!!!! Lots of Fun, Friends, Family and Food. Anyways I haven't wrote on here in A while just been Super Super busy. Nicks surprise Birthday party went great I really don't think he was SURPRISED though. He is way to smart for me... Then we had the Halloween party to go to. That was great I love to people watch and try to figure out what peoples costumes are. Well we are getting ready to leave. Going out to enjoy the nice weather. Tomorrow is the Halloween party at work 15 kids in costumes consuming WAY TOO MUCH sugar... I hope I can handle it... Have A great week and Show me some love... I love to gets Comments... XOXO
My name is Amanda and my husband Nick has Cystic Fibrosis.We have been together for 9 years and have one small furbaby named Jag.I love all things southern and have A weakness for antiques. I am A DIY kinda gal and love A challenge.I am so greatful to have someone as special as Nick in my life. He has truly turned my world upside down and showed me the meaning of life.I started this blog in hopes that it would help me in my every day feelings and struggles as A CF wife.Along the way I can only hope that our story helps other wives or couples that are effected by CF and educate those who dont know what it is.
Meet Nick-Living with CF
Nick is 26 years old and has Cystic Fibrosis. He is A sports fanatic but is A Gator boy at heart.He continues to beat the odds every day and refuses to give up in his fight to beat this monster of A disease.Nick is in the process of getting his lung function up to avoid being listed for A double lung transplant.He is A fighter and always seems to amaze me. Nick is always optimistic and always seems to find the good in A situation. He is wonderfully made and forever mine.
My Bucket List
1.Invite A less fortunate over for Thanksgiving Dinner
2. Take A photography Class
3.Convince Nick to get A pedicure
4.Get A full body massage
5.Let my light shine more
6.Have A romantic dinner on A yacht with NIck
XX 7.Watch A sunset with Nick
XX 8.Say sorry to people that I have hurt
XX 9.Stop worrying so much and just LIVE LIFE
10.Read the Bible all the way through
XX 11.Act my age
12.Take my brother and sister on A shopping spree
13.Own all of the Nicholas Sparks books
14.Go to Hollywood California
15.Have A picnic in the park
XX16.Save lots of money for A new house
17.Hope that someone throws me A suprise birthday party with all the ones that I love there
XX 18.Buy A hammock
19.Get all my wedding pictures into A photo album
20.Get Nick to go on A cruise with me
21.Take A vacation with just my mom and I
22.Help build A house with Habitat for Hummanity
XX23.Learn to cook
24.Write A letter to my parents and tell them how I have ever felt about things in my life... JUST LET IT ALL OUT
25.Grow A rose garden like my moms
26.Raise LOTS of money to help find A cure for CF
27.Go and visit with my Grandpa
28.Go deep sea fishing
29.Learn to surf
XX30.Go to A Gator game with Nick
31.Be the best role model I can be for my brother and sister
32.Grow old with Nick
33.Own my dream home
34.BE A MOM
35.Own A real Chanel purse
36.Buy A guitar and learn how to play it
XX 37.Be nice to someone I dont really care for
38.FINISH COLLEGE
XX 39.Do my part to make people aware of what Cystic Fibrosis is
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