Day one in the hole

Yesterday at around 3:00 Nick got checked in and to our new home away from home.When they came to the room to check his vitals his oxygen was at 86 and he had lost 10 pounds.Lets just say Nick was A little upset about that and was pretty discouraged.I had to be to work this morning at 10:00 this morning and was so sad,I just wanted to stay up there with Nick.When I got up to the hospital this evening he was singing to A different tune.The Dr.some blood drawn to check his nutrition levels due to the weight loss and was surprised to see that everything was good.

The Dr. told him that he is such a perfect candidate for A double lung transplant because he does not have any other CF related issues....Its just his lungs. We are taking it one day at A time and besides me showing up to work looking like A zombie today we are doing good.

Thankful for another day!!!! 

P.S. If you would like Nicks room number,Phone number or the address just send me A e-mail or A face book message

Itsy bitsy teenie weenie bikini

IS THIS ALL THERE IS ????

Today was the day that I dread the most of all through out the year,BATHING SUIT SHOPPING!!

I will have to say however that this year was A little easier on the eyes due to my teenie tiny bit of weight loss.I swear they are all are sooooo small or I am just that big. I eventually found one at Wet Seal.After going back and forth between Wet Seal and Pac Sun. The lady at Pac Sun was SO sweet and took her time to really help me. I love people who are in the customer service area and actually show GREAT customer service.

Nick and I are getting our selves ready for A much needed vacation to visit my Mom and Step Dad in Ft. Lauderdale. I cant belive it but it has been A whole year too long since I have gotten to see my Mom and Step Dad. I miss them too much and wish that we lived a lot closer than we do. They just recently purchased a gorgeous house in my hometown of Hollywood Florida. I cant wait to go see the new house and go out on the boat for A day. It is really nice down there but by the end of my vacation I am sooo ready to head back to my little hometown.

****UPDATE ON DOING DISHES  NIGHT****

Due to A lot of people not being able to come for various reasons we changed the date. I really wanted people to be able to make it so now it is on THURSDAY APRIL 29TH @ 6:00.Also MOON RIVER PIZZA will be providing Pizza along with goodies from Edge wood bakery. How YUMMY! Please comment me and let me know if you will be attending and need directions...Cant wait to see you all there.

CHECK OUT INFORMATION FOR DOING DISHES LADIES NIGHT OUT HERE....

ITS GREAT TO BE A FLORIDA GATOR!!!!

I SAID ITS GREAT TO BE A FLORIDA GATOR!!!!! Ok so I had to get on here and brag A little bit.I hope everyone else enjoyed watching that game as much as Nick and I did. Nick and I got invited to A party with some old friends that we haven't really got to hang out with A whole lot lately. It was so good to see everyone and catch up and enjoy the game. I once again have been super busy with fundraising for the CF foundation and just life in general that I haven't had much time to write. BIG NEWS THOUGH... Nick has gained 5 pounds.... If you don't know for someone with CF to gain any weight is kind of A big deal. So we were really happy about that. Kinda weird though when you loose 5 pounds you don't seem to see it much but I can really tell Nick has gained that 5 pounds.. LOL Anyways Hope everyone has A great weekend... I know that football game was A great way to kick off the weekend... Oh yeah don't forget to visit our Great Strides link and help CF stand for Cure Found... The link is to the right XOXO ALWAYS

IM ON A MISSION

OK, So I am on A mission to help Nick gain some weight. If you know Nick you know he is A skinny guy. Having cf Nicks body does not have the enzymes he needs to help him keep on his weight. So every time he eats he has to take 3-4 pills that gives him those enzymes that our body naturally produces. Even then he only maintains his weight. Nicks nutritionist informed us that Nick should be daily consuming 4500 calories or more. Believe it or not that is very hard. So I am asking everyone for their HIGH CALORIE RECIPES. If you have them please e-mail them to me or message them to me on myspace. Hopefully we can fatten him up some. my e-mail is mrs.brown1110@yahoo.com

Thanks A bunch XOXO Always