Hello, I hope everyone had A great weekend and are enjoying the coming of the holiday season. Yesterday Nick and I along with his sister and her husband went to take some pictures. Courtney wanted to get some maternity pictures for her baby shower and photo album.We had planned on doing the pics on the beach and well... Mother nature had other plans. It has been so rainy and cold here that it just wasn't picture weather for the beach unfortunately.So Friday night I was thinking and thinking of where we could go inside to take pictures. I really didn't want to drive into Jacksonville. Finally I thought about the Ritz Carlton on Amelia island. I know that they always decorate SO pretty for Christmas. So I talked with A family friend of ours who would be taking the pictures and she liked the idea as well. I AM SO GLAD we went there, It was absolutely beautiful and they were so nice about letting us do the pics there. We were really there to take pics of Courtney and Chuck and her preggo belly, But you know I of course wanted A couple of Nick and I... Do you blame me ? The location was gorgeous. So below are some pics, I hope you enjoy them I know I cant stop looking at them. Courtney is now 8 months along and VERY pregnant. We are all getting ready for the arrival of Trace and are SO excited.Nick is doing well,He is still having on again off again back pain,but has continued to maintain his weight. Shortly after Christmas we will be working on getting the application for his transplant put in and hope to start the evaluation soon.Thanks for all the thoughts and prayers. XOXO Always
My name is Amanda and my husband Nick has Cystic Fibrosis.We have been together for 9 years and have one small furbaby named Jag.I love all things southern and have A weakness for antiques. I am A DIY kinda gal and love A challenge.I am so greatful to have someone as special as Nick in my life. He has truly turned my world upside down and showed me the meaning of life.I started this blog in hopes that it would help me in my every day feelings and struggles as A CF wife.Along the way I can only hope that our story helps other wives or couples that are effected by CF and educate those who dont know what it is.
Meet Nick-Living with CF
Nick is 26 years old and has Cystic Fibrosis. He is A sports fanatic but is A Gator boy at heart.He continues to beat the odds every day and refuses to give up in his fight to beat this monster of A disease.Nick is in the process of getting his lung function up to avoid being listed for A double lung transplant.He is A fighter and always seems to amaze me. Nick is always optimistic and always seems to find the good in A situation. He is wonderfully made and forever mine.
My Bucket List
1.Invite A less fortunate over for Thanksgiving Dinner
2. Take A photography Class
3.Convince Nick to get A pedicure
4.Get A full body massage
5.Let my light shine more
6.Have A romantic dinner on A yacht with NIck
XX 7.Watch A sunset with Nick
XX 8.Say sorry to people that I have hurt
XX 9.Stop worrying so much and just LIVE LIFE
10.Read the Bible all the way through
XX 11.Act my age
12.Take my brother and sister on A shopping spree
13.Own all of the Nicholas Sparks books
14.Go to Hollywood California
15.Have A picnic in the park
XX16.Save lots of money for A new house
17.Hope that someone throws me A suprise birthday party with all the ones that I love there
XX 18.Buy A hammock
19.Get all my wedding pictures into A photo album
20.Get Nick to go on A cruise with me
21.Take A vacation with just my mom and I
22.Help build A house with Habitat for Hummanity
XX23.Learn to cook
24.Write A letter to my parents and tell them how I have ever felt about things in my life... JUST LET IT ALL OUT
25.Grow A rose garden like my moms
26.Raise LOTS of money to help find A cure for CF
27.Go and visit with my Grandpa
28.Go deep sea fishing
29.Learn to surf
XX30.Go to A Gator game with Nick
31.Be the best role model I can be for my brother and sister
32.Grow old with Nick
33.Own my dream home
34.BE A MOM
35.Own A real Chanel purse
36.Buy A guitar and learn how to play it
XX 37.Be nice to someone I dont really care for
38.FINISH COLLEGE
XX 39.Do my part to make people aware of what Cystic Fibrosis is
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