Tuesday, July 21, 2009

Update on Nick

Nick started his IVS yesterday!!!!! When we went to the Dr. two weeks ago and Nick gave A culture. We had to wait on the culture to get back to see what Nick was growing in order to start his IVS. Nick finally started IVS yesterday and oh what fun it has been.They have him on one antibiotic that he has to change every 8 hours. So this means many sleepless nights,Not a lot of fun.Nick doesn't mind too much because he would do anything to not have to stay in the hospital.His nurse came out yesterday and drew blood. When she came today she said that Nicks blood came back and that his blood sugar was VERY low. She was pretty concerned about that and says its from Nick not eating.Throughout the day Nick is suppose to eat 4500 calories A day. I am lucky if he eats 1500 calories A day. It is A constant struggle with Nick and cystic fibrosis. It is so emotionally and physically draining for the both of us I am sure. I just feel like I am at A loss of what to do anymore.Since we got back from camp Nick has been doing great with his meds, I am so thankful for that. I swear though if its not one thing its another.Its just A never ending battle that I am so tired of fighting...Nick too!!!! Anyways I am just venting, Other than that Nick is doing fine he just never has A appetite. I will keep everyone updated. XOXO Amanda

3 comments:

Genia O'Neal said...

Psalm 25:5
guide me in your truth and teach me, for you are God my Savior, and my hope is in you all day long.

Praying for you and Nick! Love you much!

Nene

RunSickboyRun.com said...

Hope the IV's do their job and Nick starts to feel better. I know CF can get tiring at times...but the alternative is even worse.

Ronnie

Robert Schwarzman said...

tell nick i said i hope he gets better